In this section you will find useful information relating to the care that is provided by Jessie May - whether you are a parent, health professional or someone who is able to help support our work by fundraising
To be told that your child will die before you is every parent’s worst nightmare. For many families in the local area, this is a reality. Some of these children will die when they’re very young; others will deteriorate slowly over a number of years, and their full-time care usually falls to parents who have to cope – 24 hours a day, 7 days a week, 365 days a year.
Jessie May recognises that the whole family is under huge emotional and physical strain. Through our team of dedicated Children’s Nurses and Nursery Nurses we provide specialist care and support to help alleviate some of this pressure. This support is provided in the comfort of the family’s own home whenever possible from the time of diagnosis onwards.
Each child is central to the service we provide and we believe in helping our children reach their potential and to make the most of the precious time they have.
The care we provide is holistic and family-centered, working closely with other professionals involved in supporting the family to ensure continuity of care and that all needs are met, whether physical, emotional, social or spiritual.
As the conditions or illnesses that the children have are all life-limiting and have no reasonable hope of cure, the service provided by Jessie May is described as children's palliative care which is defined as:
"an active and total approach to care, embracing physical, emotional, social and spiritual elements. It focuses on enhancement of quality of life for the child and support for the family and includes the management of distressing symptoms, provision of respite and care through death and bereavement." ACT and the Royal College of Paediatrics and Child Health 1993
For further information about our work please look through The Way We Work section, or to find out about referring to Jessie May please visit the Make A Referral section.
Registered charity number 108604